Desperate for transplant, girl's family petitions Washington - FOX 13 News

Desperate for transplant, girl's family petitions Washington

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TAMPA (FOX 13) -

The fight continues to save 10-year-old Sarah Murnaghan. She's the Philadelphia girl who has cystic fibrosis and needs a lung transplant.

Murnaghan is too young to be on the adult transplant list, and there are no child-sized lungs in the donation pipeline. Her parents are now hoping to go around organ donation systems, by getting a direct donation from another family.

"If we get lungs tonight, I'm not done, this isn't right, this isn't just, this isn't ok," says Janet Murnaghan, Sarah's mother. "We don't treat our children this way."

Friday, they asked Health and Human Services Secretary Kathleen Sebelius to change the rules-- something that won't happen in time to help Sarah.

"Of course we are happy this policy is going to be changed in the future, and it's going to change for kids in the future. But there are kids dying today, and the devastating part of the news is they're just going to let those kids die. It is in her power to change this," Murnaghan says.

The family has hired a law firm to petition Secretary Sebelius to intervene, claiming she has authority to override current donation protocol.

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